PRO/EDR> Undiagnosed cerebral disease – South Sudan: nodding disease

River Blindness — South Sudan
Elimination of “river epilepsy” has started in South Sudan.
In November 2013, I [Robert Colebunders] visited Mvolo, in South Sudan, in an effort to identify the cause of nodding syndrome, at that time a mysterious form of epilepsy of unknown aetiology.
The situation in Mvolo was catastrophic. A rapid assessment showed that one in 6 children had epilepsy, and one in 2 families had at least one child with epilepsy. I felt very uncomfortable, because I had nothing to offer them to reduce